Each month, The Modified Dolls and our Chapters support a different 501(c)(3) organization through fundraising, voluntarism, and building awareness.
Since 1981, The Marfan Foundation has led the fight to victory for those affected by Marfan Syndrome and its related disorders. Until the formation of The Marfan Foundation, Marfan Syndrome was widely unknown and misunderstood. The Marfan Foundation works to inform the public and the medical community with the most accurate and up to date information and advance lifesaving treatments to improve the quality of like for those with Marfan Syndrome.
Marfan Syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue holds all the body’s cells, organs and tissue together. It also plays an important role in helping the body grow and develop properly. Marfan Syndrome may affect different parts of the body for different people and its signs are different for each person. Evidence of Marfan Syndrome is most often found in the heart, blood vessels, bones, joints, and eyes, while the lungs, skin and nervous system may also be affected. Some signs are easy to see, such as long arms, legs and fingers, tall and thin body type, curved spine, chest sinks in or sticks out, flexible joints, flat feet, crowded teeth, or stretch marks on the skin that are not due to weight gain or loss. Other signs may not be as obvious and may make early diagnosis more difficult. These signs may include heart problems, especially those related to the aorta, sudden lung collapse and eye problems, including severe nearsightedness, dislocated lens, detached retina, early glaucoma, and early cataracts.
February is Marfan Awareness Month and The Modified Dolls are using the opportunity to help The Marfan Foundation bring awareness to Marfan Syndrome and its related disorders and ask for your assistance. To help, you can simply share posts from The Marfan Foundation’s Facebook page with #MarfanAwareness. Other ways to help:
- Learn other ways to create social media #MarfanAwareness using these ideas from The Marfan Foundation
- Make a donation to The Marfan Foundation
- Check The Modified Dolls Facebook page for events supporting The Marfan Foundation near you
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